|
National Family Caregiver Month Educational Webinar Series
November/December 2009
In honor of National Family Caregivers’ Month in November 2009, The ALS Association National Office, Patient Services Department has assembled a set of web-based presentations designed specifically for caregivers providing attention and care to people living with ALS. Experts in their respective fields are in the line-up. Please join us for informative and practical discussions and to share experiences, tips and support.
Presentations are listed below. Click on any link and follow the easy on-screen instructions for joining the webinar.
- Anniversary Reactions
After the life of a person living with ALS has comes to an end, family and friends often experience additional feelings of loss as they pass through the holiday season and personally important events. This presentation will overview ways to cope and celebrate loved ones.
(Susan Stone, MA, LMFT) on Tues, Nov. 24 at 8:00 p.m. ET / 5 p.m. PT
https://alsa.webex.com/alsa/j.php?J=822193465&PW=67935ad6df3b195d09545f
-
December 8 (Tuesday) @ 11:00 am PT
Anticipating Changes in Wheelchair Technology to Maximize Long Term Function for Patients with ALS
Speaker: Lois Brown, MPT, ATP, from Invacare Corp. Also speaking will be Alisa Brownlee, ATP, ALS Association, National Office. One of the most important aspects of providing a wheelchair for an individual with ALS is to design a system that will ensure comfort, postural stability and suitable access to chair controls. This webinar will discuss strategies and questions related to prescribing or making changes to the wheelchair. Accessing the environment via wheelchair integrated communication devices will also be covered. Please join us for this special webinar on maximizing long term function for clients with ALS.
https://alsa.webex.com/alsa/j.php?J=821605797&PW=NMzVmMmI2OWM0
Meeting Number: 821 605 797
Meeting Password: TopicCall2009
-
December 16 (Wednesday) @ 4:00 pm PT
Anticipating Changes in Wheelchair Technology to Maximize Long Term Function for Patients with ALS
Speaker: Lois Brown, MPT, ATP, from Invacare Corp. Also speaking will be Alisa Brownlee, ATP, ALS Association, National Office. One of the most important aspects of providing a wheelchair for an individual with ALS is to design a system that will ensure comfort, postural stability and suitable access to chair controls. This webinar will discuss strategies and questions related to prescribing or making changes to the wheelchair. Accessing the environment via wheelchair integrated communication devices will also be covered. Please join us for this special webinar on maximizing long term function for clients with ALS.
https://alsa.webex.com/alsa/j.php?J=829651158&PW=NZjM2ZDExOGI5
Meeting Number: 829 651 158
Meeting Password: TopicCall2009
Did you miss a presentation? See below for recorded versions:
- Compassion Fatigue: Reduced Capacity to Care
Speaker: Jane Barton, MTS, MASM
Caregivers often find that their empathetic and compassionate care can become extended and extensive. When it does, it can take a toll on mind and body, making caregiving a challenge. This presentation will examine compassion fatigue and strategies to cope with its impact. (64 minutes)
https://alsa.webex.com/alsa/ldr.php?AT=pb&SP=MC&rID=58142712&rKey=4c02da92aa44ad20
- If Fiber Doesn't Work, What does? ...Troubleshooting Tips for Caregivers
Speaker: Lorraine Danowski, MS RD
This presentation will review tube feeding strategies and the oral high calorie products available, including product features and alternatives, formula and medication administration. Nutritional needs will be reviewed. (50 minutes)
https://alsa.webex.com/alsa/ldr.php?AT=pb&SP=MC&rID=58154657&rKey=8180d966fa1f5897
- Safe & Sound: How to Prevent Medication Mishaps
Speaker: the National Family Caregivers Association
This presentation is for anyone caring for a loved one taking multiple medications to learn how to prevent medication errors and events.
http://thefamilycaregiver.org/national_family_caregiver_month/teleclass.cfm
- Financial Planning
Speaker: Cynthia Haddad, CFP
This presentation will help attendees to manage their financial needs in the present with an anticipating eye to life after ALS.
A variety of strategies, considerations and options will be examined. Cynthia Haddad is a Certified Financial Planner.
https://alsa.webex.com/alsa/ldr.php?AT=pb&SP=MC&rID=58284222&rKey=5bbbafd181c6ca2d
Log On Tips
-
Sometimes it takes a few moments for WebEx to load, until it does so, you might see a white screen with The Association’s logo or a blank screen that says, “Meeting in Progress.” No worries, you’re in the right place.
-
If participating in the computer portion of the call, don’t use the call-in phone number. At log-in, the site will ask you for a call back number. Enter the direct line where you want to take the call. Within 30-60 seconds, WebEx will call your phone directly. Sometimes there are several seconds of silence after you answer and before you are put into the conference.
November 2009
Survey for People with ALS Nationwide
Why do you choose to receive your care from a multidisciplinary ALS clinic?
The ALS Association Certified Center of Excellence at Penn State Hershey Medical Center in partnership with Zachary Simmons, MD (Professor of Neurology & Director of the Neuromuscular Program) has developed a survey and requests your input. We are advertising this study to all people with ALS across the United States and would appreciate your assistance in sharing this information
Please click on the following link: www.pennstatehershey.org/als
(The link for the survey is in the center of the page, to the left of the photo.)
Alternatively, paper and pencil versions of the questionnaire package are available by request from Beth Stephens, Research Coordinator, at 717.531.0003, ext. 283395.
Wheelchair Van for Sale
2003 Dodge Caravan Sport handicap accessible van (click here for a printable flyer)
Item Description: Conversion wheelchair accessible van, VMI in-floor sliding power ramp, 51k miles, private party. Includes tie down straps, front & rear air/heat, remote open/close/ramp, removable front seats and bases, white/gray, 3.8L V6, AM-FM, privacy glass, tilt, cruise. Van “kneels” for van extension. Great condition, safety inspected, new tires and battery, anti-lock brakes, power seats, power windows, power door locks, power mirrors, well maintained.
Price: $21,000.00
Vin: 2D4GP44R13R274489
Seller Phone Number: 209-614-4114 or 209-614-4113
New Air Travel Rules for Respiratory Equipment
Air travelers using respiratory equipment must follow new labeling regulations — or risk losing their seats
Travelers with respiratory difficulties who use commercial airlines need to be aware of a new labeling requirement for ventilators, respirators, positive airway pressure devices (i.e., CPAP, BiPAP) and personal oxygen concentrators.
The new regulations require special labels on these machines to ensure that they meet Federal Aviation Administration requirements for medical equipment. Trying to travel without following the new regulations may result in passengers being denied a seat, or being required to turn off the respiratory equipment during the flight.
Learn more about this new regulation that is already in effect
Free Wheelchairs for use at several State Beaches!
Some of our state beaches now have wheelchairs available that are made specifically for use in the sand. These chairs are available by simply presenting your drivers license. The State Park Ranger then gives you a chair to use for as long as you want until the end of the day.
Here are some web pages showing the State park web pages that have a special search engine to show which beaches and parks have specific accessibility services available.
Accessibility Overview for State Parks
http://www.parks.ca.gov/?page_id=21944
Search for Accessible Features by State Park:
http://access.parks.ca.gov/
State beaches Sand Wheel Chair Availability:
http://access.parks.ca.gov/activity.asp?type=4&sort=alpha
The chair we used was exactly like this:
http://ultralightwheelchairs.org/wp-content/uploads/2009/01/262_beach-wheel-chair-300x284.jpg
|
The ALS Association Greater Bay Area Chapter
